Prof G's MS-Selfie Newsletter

Gavin Giovannoni
MS-Selfie Newsletter - the self-management of multiple sclerosis
Created 27 Jun 2021
78
Posts
1,987
Likes
1,350
Comments
19
Mentions
  • TeachNeuro: fingolimod rebound
    09 Nov 2021 • 1 min read • 40 13
    Question 1 We know that some patients rebound when they discontinue fingolimod. When patients have clinical or radiological evidence of disease activity, and a clinical decision is made to escalate tr...
  • Bullseye: is your MS being treated-2-target?
    08 Nov 2021 • 6 min read • 39 10
    Are you on a DMT? What is the objective or treatment target for your MS? This is another question that needs to be answered before you commit yourself to a specific treatment strategy or DMT. What is ...
  • Case study: cervical intraepithelial neoplasia (CIN) and ocrelizumab
    06 Nov 2021 • 6 min read • 27 12
    Case study What would you suggest to a person on ocrelizumab who 10 years previously had CIN 3 (cervical intraepithelial neoplasia grade 3) and was told the only thing stopping it from being cancer wa...
  • Intermittent diarrhoea in MS
    02 Nov 2021 • 2 min read • 35 14
    Did you know constipation with intermittent diarrhoea may mean you have faecal impaction? Photo by Mitchell Orr on Unsplash The majority of people with MS have bowel problems, in particular constipati...
  • Case study: IVIg as a treatment for MS
    01 Nov 2021 • < 1 min read • 2 4
    Case study I had a very simple set of bloodwork done from the week of the onset of my first MS symptoms and it showed both EBV IgG and IgM levels that were through the roof. I was 35 years old and nev...
  • Peer-2-peer healthcare: are we ready for a revolution?
    30 Oct 2021 • 6 min read • 43 47
    I am aware that many of you, i.e. people with MS (pwMS), are feeling very frustrated with the level of care and attention you are receiving from healthcare professionals (HCPs) and the healthcare syst...
  • Case study: ocrelizumab and COVID-19 vaccine boosters
    29 Oct 2021 • < 1 min read • 5 6
    Case study I am a 49-year-old man diagnosed in 2003. Double AZ vaccination in March this year. I started Ocrelizumab in April (having been moved after 12 years on Natalizumab). I was due my first full...
  • Do you know how to stack your lungs?
    25 Oct 2021 • 6 min read • 35 9
    How bad is your breathing and lung function? Photo by engin akyurt on Unsplash Every year a few of our patients with more advanced MS die. I recently received an email from the husband of one of my pa...
  • Case study: no regrets
    21 Oct 2021 • < 1 min read • 13 10
    Case study I am a 33 years old male and I was diagnosed with MS 6 years ago. The symptoms which led to my diagnosis were sensory (numbness in both legs). Prior to my diagnosis, I had some other mild s...
  • Do you suffer from cog-fog, fatigue or sickness behaviour?
    19 Oct 2021 • 4 min read • 42 32
    Did you know that MS-related fatigue could be caused by sickness behaviour? Photo by Kinga Cichewicz on Unsplash Sickness behaviour is a coordinated set of behavioural changes that occur in response t...
  • View More on Substack »